Untold Stories: Life with Myasthenia Gravis

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

Recent Episodes

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Recent Reviews

MESTRK

So important to the community

This podcast is so important for this community. Such a great space to share the stories of the people living with these conditions. Despite the challenges of living with MG, this fills me with so much hope.
C Buhay

It’s the little things

I was shocked to find this show and see myself in every story. 12 years into life with MG and things have gotten easier to manage. At the end of the day it’s realizing your not alone that fills in the cracks on the hard days. Thank you for making this show!
Breesa2

Untold Story

I ran upon this podcast while in my car would love to tell the story of my Aunt who was a star athlete and got diagnosed with this disease in 1982 she passed in 88
FrankAllen1123

I’m just two eps in and already so thankful.

Wow. This podcast is full of resources that have helped me better understand my MG diagnosis, and connected me with other MG communities. I am based in southern WI and heard about Conquer MG (which is Chicago-based) through this pod… Have already made fast friends with some of the folks involved with that org. Thank you, and please make MORE episodes!
yhkocvmigfvnl

Really

The audience for this is tiny. There is absolutely no reason I should be hearing ads for this, multiple times an episode, every single podcast I listen to. This has 5 reviews total now, the ads obviously aren’t working chill out
RustyBennington12

So important for the MG community

This is the first time there has been an entire show dedicated to those living with MG. Thank you for making this!!!!

Disclaimer: The podcast and artwork on this page are property of the podcast owner, and not endorsed by UP.audio.